Research

Participate In A Study

Why Participate?

To contribute to research that is focused on improving the day-to-day life in ways that matter for people with SCI. We have all different kinds of studies, and many SNERSCIC studies have an interview format. Interviews can be performed in person or by telephone. We are also happy to make other accommodations as needed.

See Currently Recruiting for studies you can participate in right now. To learn more about participating in SNERSCIC studies:

Dave Estrada
SNERSCIC Program Manager
857-225-2472
destrada@partners.org

The following SNERSCIC studies funded by our SCI Model System grant are currently looking for participants:

National Spinal Cord Injury Model Systems Outcomes Database Study (the Outcomes Study)

See Details of Study

Equity and Quality in Assistive Technology (EQuATe) 2.0 for Individuals with Spinal Cord Injury

See Details of Study

The following researchers affiliated with SNERSCIC are recruiting for these additional SCI-related studies:

INSPIRE Lab – Technology to Promote Functional Independence

See Details of Study

Hybrid-FES Exercise to Prevent Cardiovascular Declines in Acute SCI

See Details of Study

As a Spinal Cord Injury Model System Center, SNERSCIC conducts research and contributes data to the National Spinal Cord Injury Statistical Center. SNERSCIC conducts center-specific research (at its own center), and also conducts multi-center or module studies with other SCIMS Centers. SNERSCIC studies in 2016-2021 include:

SNERSCIC contributes data to the National Spinal Cord Injury Database, which includes more than 32,000 individuals with SCI. Information is gathered from individuals, with their consent, during hospitalization and through follow up at one and five years after injury, and every five years thereafter. Data from the SCIMS National Database provides information about the course of recovery, trends in cause and severity of SCI, health service delivery and costs, treatment, and rehabilitation outcomes. The database is a rich source of data for research and analysis of outcomes.

Learn more.

The SCI-FI instrument was designed specifically for persons with SCI, regardless of level or severity of injury. The content of the SCI-FI is based upon an extensive review of the literature, input from patients with SCI, and clinician focus groups, and is grounded within the International Classification of Function, Disability, and Health (ICF) framework.

With the development of the SCI-FI/AT, we now have available SCI-FI scales that evaluate a person’s ability to function using adaptive technology in the areas of Basic Mobility, Self-Care, Ambulation, Fine Motor, and Wheelchair function. There are 178 total items in the final SCI- FI/AT domain item banks. Short forms are aptly named as a short paper-based version of the full item banks of each functional domain of the SCI-FI/AT, which is currently administered via computer as a computer adaptive test (CAT).

Aim 1 –Create a SCI-FI/AT inpatient short form that can be completed efficiently by clinicians on patients while they are in the inpatient rehabilitation setting. This form can be used as part of the SCI Model Systems (SCIMS) National Database inpatient assessment, and for general use by clinicians and researchers.

Aim 2 – We will conduct a pilot study to evaluate the inter-rater reliability of having clinicians complete the SCI-FI/AT inpatient short forms with a sample of patients in the SNERSCIC SCIMS network.

Lead Principal Investigator: Dr. Mike Boninger, UPitt

SNERSCIC Lead: Bethlyn Houlihan, MSW, MPH

These tables are abstracted from the clinical trial registration website at www.clinicaltrials.gov using the search term “Spinal Cord Injury.” The most recent update occurred December 5, 2016, at which time the search found a total of 831 SCI trials. Of these, the status of 271 trials was known. The trials listed in these tables are currently actively recruiting or soon-to-be recruiting subjects.

Aim 1 – Collect descriptive data on Assistive Technology (AT) used by individuals with Spinal Cord Injury (SCI) including wheelchair make, model, failures, and repairs. This data will enable us to track the impact of insurance market changes, find differences in wheelchair failures, and present this information to wheelchair users.

Hypothesis:

  1. The prevalence and type of wheelchair failures will vary across manufacturers.
  2. Device satisfaction will be inversely correlated with adverse consequences.
  3. Response in service time for repairs will vary by vendor and service region.
  4. Users will experience additional consequences secondary to waiting for a repair to be completed.
  5. Intensity of wheelchair use will be associated with incidence of repairs.

Aim 2 – Explore the influence of individual characteristics such as financial strain, educational quality, health literacy, geographic location, and self-efficacy on differences in AT quality and other health related outcomes for individuals with SCI.

Lead Principal Investigator: Jennifer Coker, MPH, Rocky Mt. Regional Spinal Injury System, Craig Hospital

SNERSCIC Lead: Ross Zafonte, MD

This study involves a one-time phone interview to find out about how people with SCI are using Complementary and Integrative Healthcare (CIH). SNERSCIC is a collaborating site conducting interviews.

Specific Aim 1: Characterize utilization of CIH in people with SCI in the SCIMS (i.e., who is using which therapies and why?).

Specific Aim 2: Compare rates of utilization of CIH in people with SCI to the US population.

Specific Aim 3: Identify barriers to use of CIH for people with SCI (i.e., for those not using CIH, why not?).

Specific Aim 4: Determine the relationship between utilization of CIH and functional and psychosocial outcomes collected concurrently at SCIMS NDB Form II follow-up.

Lead Principal Investigators: Greg Nemunatis, MD, Mary Jo Roach, PhD; Northeast Ohio Regional Spinal Cord Injury Model System, Case Western University

SNERSCIC Lead: Chloe Slocum, MD, MPH

The goal of this project is to look at early predictors in trauma data of later treatment outcomes in traumatic SCI.  The project will merge trauma data for each person newly injured with their SCI Model System National Database data.  SNERSCIC is a collaborating site. This project involves pulling existing data from a patient’s medical record.

Lead Principal Investigators: Mark Nash, PhD; S. Florida SCI Model System, Miami Project

SNERSCIC Lead: J. Andrew Taylor, PhD

This is a population study of persons with chronic SCI assessing stakeholder perceived and objectively measured cardio-endocrine disease risks, their change over time, and effectiveness of remediation.  The overarching goals of the study are to inform stakeholders with SCI and their health care professionals of the degree of risk sustained for cardioendocrine disease both early after SCI and as a function of aging.  SNERSCIC is a collaborating site.

These are quick, easy-to-understand summaries of research we have done in recent years, without all the research mumbo-jumbo. Enjoy! And please contact us with any questions! You can also find all the SCI Model Systems Research Quick Reviews here.

Randomized Trial of a Telephone Intervention

Randomized Trial of a Telephone Intervention

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Care Call:  A First Look at a Telephone Program for Persons with Spinal Cord Injury

Care Call:  A First Look at a Telephone Program for Persons with Spinal Cord Injury

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Differential Impact and Use of a Telehealth Intervention by Persons with MS or SCI

Differential Impact and Use of a Telehealth Intervention by Persons with MS or SCI

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Development and Initial Evaluation of the SCI-FI/AT

Development and Initial Evaluation of the SCI-FI/AT

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Spinal Cord Injury-Functional Index: Item Banks to Measure Physical Functioning in Individuals with Spinal Cord Injury

Spinal Cord Injury-Functional Index: Item Banks to Measure Physical Functioning in Individuals with Spinal Cord Injury

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Biomarker of Lower Extremity Bone Density

Biomarker of Lower Extremity Bone Density

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Physical Activity Measures and Their Association with Depression and Satisfaction

Physical Activity Measures and Their Association with Depression and Satisfaction

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Tracking Functional Status across the SCI Lifespan

Tracking Functional Status across the SCI Lifespan

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Publications

Carvalho, Sandra & Leite, Jorge & Jones, Felipe & R. Morse, Leslie & Zafonte, Ross & Fregni, Felipe. (2017). Study adherence in a tDCS longitudinal clinical trial with people with spinal cord injury pdf-icon. Spinal Cord. doi:10.1038/s41393-017-0023-5

S E Skeels, D Pernigotti, B V Houlihan, T Belliveau, M Brody, J Zazula, S Hasiotis, S Seetharama, D Rosenblum & A Jette. SCI peer health coach influence on self-management with peers: a qualitative analysis pdf-iconSpinal Cord (2017) 55, 1016–1022 (2017)

Thibaut A, Carvalho S, Morse L, Zafonte R, Fregni F. Delayed pain decrease following M1 tDCS in spinal cord injury: A randomized controlled clinical trial Neurosci Letters. pdf-icon2017 Sep 29;658:19-26. doi: 10.1016/j.neulet.2017.08.024.

Vergo Houlihan, B; Brody, M; Everhart-Skeels, S; Pernigotti, D; Burnett, S; Zazula, J; Green, C; Hasiotis, S; Belliveau, T; Seetharama, S; Rosenblum, D; Jette, A (2017). Randomized Trial of a Peer-Led, Telephone-Based Empowerment Intervention for Persons With Chronic Spinal Cord Injury Improves Health Self-Management. pdf-iconArchives of Physical Medicine and Rehabilitation, 98, 1067–1076

Quick Review: http://www.msktc.org/lib/docs/Quick_Reviews/SCI_Randomized_Trial.pdfB

B Houlihan, S Everhart-Skeels, D Gutnick, D Pernigotti, J Zazula, M Brody, S Burnett, H Mercier, S Hasiotis, C Green, S Seetharama, T Belliveau, D Rosenblum, A Jette. Empowering Adults with Chronic Spinal Cord Injury to Prevent Secondary Conditions pdf-iconArchives of Physical Medicine and Rehabilitation, Volume 97, Issue 10, 2016, Pages 1687-1695.e5, ISSN 0003-9993.

Houlihan, B; Brody, M; Plant, A; Skeels, SE.; Zazula, J; Pernigotti, D; Green, C; Hasiotis, S; Jette, A (2016). Health care self-advocacy strategies for negotiating health care environments: Analysis of recommendations by satisfied consumers with SCI and SCI practitioners. pdf-iconTopics in Spinal Cord Injury Rehabilitation, 22, 13-26.

Full article is available from NARIC under Accession Number J73144.
Research in Focus post SCI Advocates and SCI Practitioners Share Their Strategies

Garshick E, Mulroy S, Graves DE, Greenwald K, Horton JA, Morse LR. Active lifestyle is associated with reduced dyspnea and greater life satisfaction in spinal cord injury. pdf-iconArch Phys Med Rehabil. 2016; 97(10):1721-7.

Timothy Belliveau, Alan M. Jette, Subramani Seetharama, Jeffrey Axt, David Rosenblum, Daniel Larose, Bethlyn Houlihan, Mary Slavin, Chantal Larose Developing Artificial Neural Network Models to Predict Functioning One Year After Traumatic Spinal Cord Injury. pdf-iconArchives of Physical Medicine and Rehabilitation, Volume 97, Issue 10, 2016, Pages 1663-1668.e3, ISSN 0003-9993.

Mercier HW, Ni P, Houlihan BV, Jette A. (2015) Differential impact and use of a telehealth intervention by persons with MS or SCI. pdf-iconAmerican Journal of Physical Medicine and Rehabilitation, 94(11), 987-999. PMID: 25888652.

Quick Review: http://www.msktc.org/lib/docs/Quick_Reviews/SCI_Telehealth_Intervention_.pdf

Jette, A.M., Slavin, M.D., Ni, P., Kisala, P.A., Tulsky, D.S., Heinemann, A.W.,… Williams, S. (2015). Development and initial evaluation of the SCI-FI/AT. pdf-iconThe Journal of Spinal Cord Medicine, 38(3). DOI 10.1179/2045772315Y.0000000003

Quick Review: http://www.msktc.org/lib/docs/Quick_Reviews/SCI_Development_SCI-FIAT.pdf

Tian F, Ni P, Mulcahey MJ, Hambleton RK, Tulsky D, Haley SM, Jette AM. (2014) Tracking functional status across the spinal cord injury lifespan: Linking pediatric and adult patient-reported outcome scores. pdf-iconArchives of Physical Medicine and Rehabilitation, 95(11), 2078-2085. PMID: 24933214.

Quick Review: http://www.msktc.org/lib/docs/Quick_Reviews/SCI_Tracking_Functional_Status.pdf

Heinemann A, Dijkers M, Ni P, Tulsky D, Jette, AM. (2014) Measurement properties of the Spinal Cord Injury-Functional Index (SCI-FI) short forms. pdf-iconArchives of Physical Medicine and Rehabilitation, 95(7), 1289-1297. PMCID: PMC4382921.

Sinha R, Slavin MD, Ni P, Jette AM. (2014). Functional ability level development and validation providing clinical meaning for Spinal Cord Injury Functional Index scores. pdf-iconArchives of Physical Medicine and Rehabilitation, S0003-9993(14), 01271-4.

Doherty AL, Battaglino RA, Donovan J, Gagnon D, Lazzari AA, Garshick E, Zafonte R, Morse LR. Adiponectin is a candidate biomarker of lower extremity bone density in men with chronic spinal cord injury. pdf-iconJ Bone Miner Res. 2014 Jan;29(1):251-9. doi: 10.1002/jbmr.2020.

Quick Review: http://www.msktc.org/lib/docs/Quick_Reviews/SCI_Adiponectin_Candidate_Biomarker.pdf

Houlihan BV, Jette A, Friedman RH, Paasche-Orlow M, Ni P, Wierbicky J, Williams K, Ducharme S, Zazula J, Cuevas P, Rosenblum D, Williams S. (2013) A pilot study of a telehealth intervention for persons with spinal cord dysfunction. pdf-iconSpinal Cord, 51(6), 715-720.

Quick Review: http://www.msktc.org/lib/docs/Quick_Reviews/SCI_Telehealth_Intervention_.pdf

Jette AM, Tulsky DS, Ni P, Kisala P, Slavin M, Dijkers MP, Heinemann AW, Tate D, Whiteneck G, Charlifue S, Houlihan B, Williams S, Kirshblum S, Dyson-Hudson T, Zanca J, Fyffe D. (2012) Development and initial evaluation of the Spinal Cord Injury-Functional Index (SCI-FI). pdf-iconArchives of Physical Medicine and Rehabilitation, 93(10), 1733-50.

Tulsky, D. S., Jette, A. M., Kisala, P. A., Kalpakjian, C., Dijkers, M. P., Whiteneck, G., and Pengsheng, N. et al. (2012). Spinal cord injury-functional index: item banks to measure physical functioning in individuals with spinal cord injury. pdf-iconArchives of physical medicine and rehabilitation, 93(10), 1722-1732.

Quick Review: http://www.msktc.org/lib/docs/Quick_Reviews/SCI_Development_SCI-FIAT.pdf

Morse LR, Sudhakar S, Danilack V, Tun C, Lazzari A, Gagnon DR, Garshick E, Battaglino RA. Association between Sclerostin and Bone Density in Chronic SCI pdf-iconJournal of Bone and Mineral Research. 2012;27(2):352-359.

Tulsky DS, Jett, AM, Kisala PA, Kalpakjian C, Dijkers MP, Whiteneck G, Ni P, Kirshblum S, Charlifue S, Heinemann AW, Forchheimer M, Slavin M, Houlihan BV, Tate D, Dyson-Hudson T, Fyffe D, Williams S, Zanca J. (2012) The Spinal Cord Injury- Functional Index: Item banks to measure physical functioning of individuals with spinal cord injury. pdf-iconArchives of Physical Medicine and Rehabilitation, 93(10), 1722-32. PMCID: PMC3910090. Also available online: Epub, DOI 2012.05.007.

Quick Review: http://www.msktc.org/lib/docs/Quick_Reviews/SCI_Functional_Index.pdf

Houlihan BV, Jette A, Paasche-Orlow M, Wierbicky J, Ducharme S, Zazula J, Cuevas P, Friedman RH, Williams S. (2011) A telerehabilitation intervention for persons with spinal cord dysfunction pdf-iconAmerican Journal of Physical Medicine and Rehabilitation, 90(9), 756-64.

Jette A. Contributor, Chapter 4: Rehabilitation. World Report on Disability pdf-iconWHO, 2011.

Kalpakjian C, Houlihan B, Meade MA, Karana-Zebari D, Heinemann AW, Dijkers MP, Wierbicky JM, Charlifue S. (2011) Marital status, marital transitions, well-being and spinal cord injury: An examination of the effects of sex and time. pdf-iconArchives of Physical Medicine and Rehabilitation, 92(3), 433-440.

Norweg A, Jette A, Houlihan B, Ni P, Boninger M. (2011) Patterns and benefits of driving a modified vehicle after spinal cord injury: Findings from the National Spinal Cord Injury Model Systems. pdf-iconArchives of Physical Medicine and Rehabilitation, 92, 477-483.

New York Times article: "I Use a Wheelchair. And, Yes, I'm Your Doctor"

Cheri Blauwet, MD, Dec. 6, 2017

From the article: “People with disabilities often express fear or dissatisfaction with our health care system because they face poor access and discriminatory attitudes. This must change. Perhaps having more doctors with disabilities is one solution.”

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ACRM Podcast Episode 3: Spinal Cord Injury Peers My Care My Call pilot intervention study

Bethlyn Houlihan, MSW, MPH & Sarah Everhart Skeels, MPH

Hosted by Dr. Ford Fox, Ms. Houlihan and Skeels discuss the unique My Care My Call pilot intervention study, which used peer health coaching over the phone to effectively activate people with chronic SCI in managing their own health and health care.

From the podcast: “[Participants] realize they can decide where they want to go next, and have the support to do that… There are so many things leading up to someone being ready to make an actual plan, and we really learned that those are the things that have to happen first.”

Listen to Podcast

SCI Specialist Training Course Presentations at Gaylord Hospital, Wallingford, CT

David Rosenblum MD & Diana Pernigotti MSG

Presentations from experts at Gaylord Hospital targeted to any health professionals working in any medical setting with SCI patients from a 14-week course offering a comprehensive review of neuroanatomy and the rehabilitative process related to SCI. Available presentations to date include SCI 101 and information about SCIACT, the CT Chapter of United Spinal.

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Put On Your Air Mask First

Claes Hultling MD, Amie Jackson McLain MD, Marcalee Alexander MD, Ruth Marshall MD, Chloe Slocum, MD, MPH

Workshop presentation on wellbeing in SCI professionals and strategies to combat burnout together.

International Spinal Cord Society (ISCoS), Dublin, Ireland, October 24-26, 2017.

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Valuing All Forms of Diversity and Inclusion in Medicine: The Experience of Physicians with Disabilities

Cheri Blauwet, MD

Partners Grand Rounds presentation on Jan 28, 2016, looking at legislation, barriers, and future solutions for inclusion of people with disabilities in medicine and the health professions. You can view an online summary here.

View pdf Summary

Shifting Focus: Delivering Peer-Led, Person-Centered Support Services in SCI Rehabilitation, Community Settings & Online

Bethlyn Houlihan MSW MPH (chair), Sarah Everhart Skeels MPH, Shane Sweet PhD, Sonya Allin PhD, Rob Shaw, Minna Hong, Julie Gassway RN

Presentation on the design, efficacy, and practice of skills for the My Care My Call peer health coach phone intervention for chronic SCI. Presented within a 4-hour instructional pre-course.

American Congress of Rehabilitation Medicine (ACRM) Meeting, Atlanta, GA, Oct 2017 and the SCI National Conference, Canada, Nov 2017

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Experimental Approaches to Enhance Physiological Function after Spinal Cord Injury

J. Andrew Taylor PhD, Randy Trumbower PT PhD, Christopher Minson PhD, Hannah Mercier PhD OTR/L

Symposium, ACRM, Atlanta, GA, Oct 2017

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Improved Health Self-Management through a Peer-Led Telephone-Based Empowerment Intervention for Persons with Chronic SCI

Bethlyn Houlihan MSW MPH, Sarah Everhart-Skeels MPH, Miriam Brody MPH, Diana Pernigotti MSG, Sam Burnett MA, Judi Zazula MS OTR/L, Christa Green MPH, Stathis Hasiotis, Timothy Belliveau PhD, Subramani Seetharama MD, David Rosenblum MD, Alan Jette PhD.

American Spinal Injury Association (ASIA), Albuquerque, NM, April 26-29, 2017, and the Health & Disability Research Institute Research Series, Boston, MA, Jan 2017

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More Than Just a Game: The Public Health Impact of Sports and Physical Activity for People with Disabilities

Cheri Blauwet, MD

Plenary keynote address, 2017 American Academy of Physiatrists (AAP) Annual Meeting, Las Vegas, NV on February 11. It discussed the public health impact that physical activity has had on consumers with a range of disabilities, including SCI. Dr. Blauwet also discussed the emergence of Paralympic Sports Medicine and how universal design can be applied to sports and physical activity programs.

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Using Pediatric Spinal Cord Injury (PEDI-SCI) Activity Limitation and Participation Short Forms in Clinical Settings

MJ Mulcahey PhD & Mary Slavin PhD

Workshop presentation, International Spinal Cord Society (ISCoS) Meeting, Vienna, Austria, Sept. 14-16, 2016. Click here for related abstract

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Adapting the SCI-FI Scales to Spanish Language and Culture

Mary Slavin PhD, Jonathan Comins PhD, Iliana Ycute-Castro

Presentation which focused on cutting edge research findings for clinical and multicultural applications. International Spinal Cord Society (ISCoS), Vienna, Austria, Sept. 14-16, 2016

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Tumors of the Lower Urinary Tract in Individuals with Spinal Cord Injury

Chloe Slocum, MD, MPH

International Spinal Cord Society (ISCoS), Dublin, Ireland, October 24-26, 2017.

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Demonstration of a Software Application for Optimal Prediction of Functional Outcomes After Spinal Cord Injury

Tim Belliveau PhD, Alan Jette PT PhD, David Rosenblum MD, Bethlyn Houlihan MSW MPH, Diana Pernigotti MSG

ACRM, Atlanta, GA, Oct 2017

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Core Resistance Training Strength Improvements Relate to Gains in Balance for Adults with Paraplegia

Hannah Mercier, PhD OTR/L, J. Andrew Taylor PhD

ACRM, Atlanta, GA, Oct 2017

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How an SCI Peer Health Coach Influences Empowerment and Health Self-Management with Peers

Sarah Everhart Skeels MPH, Diana Pernigotti MSG, Bethlyn Houlihan MSW MPH, Miriam Brod, MPH, Sam Burnett MA, Stathis Hasiotis, Judi Zazula MS OTR/L, Christa Green BA, Tim Belliveau PhD ABPP, Subramani Seetharama MD, David Rosenblum MD, Alan Jette PhD PT

ASIA, Albuquerque, NM, April 26-29, 2017

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Spinal Cord Injury Functional Index (SCI-FI): Ability to Detect Functional Change from Rehabilitation Discharge to One-Year Post Spinal Cord Injury

Mary Slavin PhD, Tamra Keeney , Pengsheng Ni PhD , David Tulsky PhD , Pamela Kisala MS, Allen Heinemann PhD, Susan Charlifue PhD, Denise Fyffe PhD, Daniel Graves PhD, Ralph Marino PhD, David Rosenblum MD, Denise Tate PhD, Lynn Worobey PhD, Mary Dawson, Alan Jette PT MPH PhD

ISCoS, Vienna, Austria, Sept. 14-16, 2016

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'My Care My Call', a Peer-Led, Telephone-based Intervention for Persons with Spinal Cord Injury Improves Self-Management Behaviors

Bethlyn Houlihan MSW MPH, Miriam Brody MPH, Sarah Everhart-Skeels MPH, Diana Pernigotti MSG, Judi Zazula MS OTR/L, Sam Burnett MA, Stathis Hasiotis, Christa Green BA, Subramani Seetharama MD, Timothy Belliveau PhD, David Rosenblum MD, Alan Jette PhD

ASIA, April 14-16, 2016, Philadelphia, PA
ACRM, Nov. 2-4, 2016, Chicago, IL

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Strategies for Peer Telecounseling: Opening the Black Box in Chronic Spinal Cord Injury

Bethlyn Houlihan MSW MPH, Miriam Brody MPH, Sarah Everhart-Skeels MPH, Stathis Hasiotis, Diana Pernigotti MSG, Judi Zazula MS OTR/L, Christa Green BA, Timothy Belliveau PhD ABPP, David Rosenblum MD, Subramani Seetharama MD, Alan Jette PhD

ASIA, April 14-16, 2016, Philadelphia, PA

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Posters on the Development and Use of the New England SCI Toolkit (NESCIT)

David Rosenblum MD, Diana Pernigotti MSG, Timothy Belliveau PhD ABPP, Joanne Morello PT DPT, Judi Zazula MS OTR/L, Bethlyn Vergo Houlihan MSW MPH, Miriam Brody, Christa Green, Subramani Seetharama MD, Alan Jette PhD PT MPH

Multiple posters related to NESCIT were presented by Dr. Rosenblum and Ms. Pernigotti at various professional conferences from 2015-2017, covering different aspects on the development and use of the Toolkit.

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Development of a Peer-Led Phone Intervention for Goal-Setting Primary Healthcare Needs in Chronic Spinal Cord Injury

Bethlyn Houlihan MSW MPH, Sarah Everhart-Skeels MPH, Judi Zazula MS OTR/L, Diana Pernigotti MSG, Stathis Hasiotis, Miriam Brody MPH, Christa Green BA, Timothy Belliveau PhD ABPP, David Rosenblum MD, Subramani Seetharama MD, Alan Jette PhD

American SCI Professionals (ASCIP), Aug 31-Sept 3, 2014, St. Louis, MO
ASIA/ISCoS, May 14-16 2015, Montreal, Canada

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Health Empowerment Approach to Promote Self-Management and Healthcare Utilization in A Peer-Led Telehealth Intervention for Adults

Hannah Mercier MS OTR/L, Bethlyn Houlihan MSW MPH, Sarah Everhart-Skeels MPH, Judi Zazula MS OTR/L, Diana Pernigotti, Alan Jette PhD

Association of Occupational Therapists (AOTA) Conference, April 16-19, 2015, Nashville, TN
ASIA/ISCoS, May 14-16 2015, Montreal, Canada

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Novel Application of the Peer Health Coach Model to Address Health Care Management Among People with Chronic SCI

Sarah Everhart Skeels MPH, Judi Zazula MS OTR/L, Bethlyn Houlihan MSW MPH, Diana Pernigotti MSG, Stathis Hasiotis, Miriam Brody, Christa Green, Hannah Mercier MS OTR/L, Timothy Belliveau PhD ABPP, David Rosenblum MD, Subramani Seetharama MD, Alan Jette PhD

ASIA/ISCoS, May 14-16 2015, Montreal, Canada
Association of SCI Professionals (ASCIP), Sept 6-9, 2015, New Orleans, LA

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Health Care Self-Advocacy Strategies for Consumers with Spinal Cord Injury

Bethlyn Houlihan MSW MPH, Sara Atkinson, Andrea Plant PT, Sarah Everhart-Skeels MPH, Alan Jette PhD

ACRM, Nov. 12-16, 2013, Orlando, FL
American Public Health Association (APHA) Annual Meeting, Nov. 2-6, 2013, Boston, MA
ASIA, May 14-17, 2014, San Antonio, TX

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Mary D. Slavin, PhD

2017 Stephen M. Haley Memorial Lectureship at the Howard H. Steel Conference on Pediatric Spinal Cord Injury/Dysfunction

Dr. Slavin presented “The SCI Pediatric Activity Measure, and the Pediatric Measure of Participation”. The Stephen M. Haley Memorial Lecture is awarded to an individual who has made significant contributions to the field of rehabilitation research. The Howard H. Steele Conference was a full day pre-course of the American Spinal Injury Association (ASIA) Scientific Meeting, and the only international educational effort focused entirely on pediatric SCI/D.

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David Rosenblum, MD

2016 Health Care Heroes Award by the Hartford Business Journal

The Health Care Heroes award identifies outstanding leaders in the health care industry who are the epitome of a “hero.” Dr. Rosenblum was nominated for his patient-centered work with rehabilitation patients.

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Cheri Blauwet, MD

2016 Ten Outstanding Young Leaders Awards by the Greater Boston Chamber of Commerce.

This honor acknowledges Dr. Blauwet’s professional, personal, and civic commitment to improving the quality of life within the Boston community.

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Alan Jette, PT, PhD, MPH

2016 John Stanley Coulter Award during the ACRM 93rd Annual Conference

This award recognizes significant contributions to the field of rehabilitation. Dr. Jette presented “Moving from Dissemination to Implementation”, in which he discussed several considerations that guide the choice of implementation strategy, and emphasized the need to direct resources to designing and applying strategies to consistently deliver what is known to work into practice.

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Ross D. Zafonte, DO, FACRM

2016 Fellow of ACRM

This honor recognizes active members with an outstanding record of professional service to ACRM who have also made contributions of national significance to the field of medical rehabilitation.

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Dr. Cheri Blauwet SCIMS Researcher Presents International Lecture on Sports in SCI

Cheri Blauwet, MD, Feb 2018

Dr. Cheri Blauwet, MD, Co-Director of Dissemination and Knowledge Translation, visited the Peter Harrison Center for Disability Sport at the University of Loughborough, UK, in early February.  Dr. Blauwet provided a series of lectures focused on the impact of sport on persons with disabilities, including SCI.

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Physiatry and Health Equity: From Training to Practice and Policy

Chloe Slocum, MD, Feb 16, 2018

Presentation at the Association of Academic Physiatrists meeting in Atlanta, GA.

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The following studies are provided as a community service for individuals who may be interested in additional study opportunities. SNERSCIC may not be involved in the design or implementation of these studies, nor do we necessarily endorse any studies listed here.

Spaulding Rehabilitation Network Research Opportunities

Study One is a six-week training with the Ekso, participants come in 2-3x/week for 6 weeks. We screen and train them with the Ekso and then at the end of the 6 weeks they have a gait lab study to see the biomechanics and interactions between the exoskeleton and bones/joints.

Eligibility Criteria

  • 20-55 years old
  • Thoracic injury T3-T12
  • Incomplete with some motor return OR Complete SCI
  • Community Living
  • Independent with transfers to/from chair
  • NO wounds on legs or bottom areas

Study Two is looking (in addition to the biomechanics) at how Ekso training could change bone density. Participants have blood tests and a CT scan of the lower leg done at Worcester Polytechnic Institute before and after the training. They come in 3x/week for 6 months. They also have the gait lab analysis done at the end of 6 months.

Eligibility Criteria

  • Complete SCI
  • Male or female 20-40 years old
  • Thoracic SCI T3-T12 at least 3 years ago, no more than 15 years ago
  • Independent with transfers to/from chair
  • NO wounds on legs or bottom areas

Compensation varies depending on the number of sessions attended, each training session is $20, screening and assessments $50. For Study One, compensation is up to $460, and for Study 2, up to $1990.

Please contact Catherine Adans-Dester at 617-952-6321 or cadans-dester@partners.org for more information.

Title: PET-fMRI assessment of brain microglia in spinal cord injury

IRB Number: 2014P000340

Description: We are using combined Positron Emission Tomography (PET) and Magnetic Resonance Imaging (MRI) to find out if the brains and spinal cords of people with spinal cord injury (SCI) and with neuropathic pain are different from people with SCI who do not suffer from neuropathic pain, as well as healthy controls. This research study requires two visits to the Martinos Center for Biomedical Imaging in Charlestown. The first visit will last 1-2 hours, and the second visit will last up to 6 hours and will include blood-draws and a PET-MRI session.

Eligible participants will receive up to $325 compensation.

Eligibility criteria

  • Healthy, or Spinal Cord Injury below cervical thoracic vertebra 5 (paraplegia or partial paraplegia) more than 3 months prior to enrollment
  • No history of major medical, neurological, or psychiatric illness (other than SCI)
  • No current or past history of chronic pain
  • Not currently on medications or drugs
  • Age 18-70
  • Non-smoker
  • Right-handed
  • No MRI-incompatible implants
  • Not claustrophobic

Please contact Clas Linnman, PhD, or Linda Dahlberg, PhD, Massachusetts General Hospital, at LDAHLBERG@mgh.harvard.edu for more information.

Additional SCI Research Opportunities by Topic

Click here for listing from the Model Systems Knowledge Translation Center

The Spinal Cord Outcomes Partnership Endeavor (SCOPE) has created this table from the clinical trial registration website using the search term “Spinal Cord Injury.” The trials listed are currently actively recruiting or soon-to-be recruiting subjects.

You can access the table here.

The Spinal Cord Outcomes and Partnership Endeavor (SCOPE) has created this table from the clinical trial registration website using the search term “Spinal Cord Injury”.   The trials listed are currently actively recruiting or soon-to-be recruiting subjects.

You can access the table here.

Study One — hour web-based wheelchair transfer training program

Principal Investigator: Dr. Mike Boninger, UPitt SCI Model System

About the Study

  • On average, wheelchair users transfer 15-20 times per day.
  • Poor technique can lead to pain in the shoulder, elbow and hand.
  • Free training available and open to anyone.
  • If eligible, you will have the option to take part in a study and receive compensation.
  • Click here to start.

Study Two — Accessibility Barriers Survey – Wheelchair Users

Principal Investigator: Alicia Koontz, PhD, UPitt

Study Purpose

The purpose of this research study is to understand how various locations and surfaces in the community affect your ability to transfer independently to and from your wheeled mobility device.

Could this Study Be Right for You?

  • Age 18 and up
  • Use a wheelchair or scooter as your primary means of mobility
  • Able to transfer to and from your mobility device by yourself
  • Have an email address and internet access

What Participants Can Expect

The study involves completing an online survey that will take approximately 30 minutes or less to complete.

If interested, contact UPitt.

United Spinal: Studies Currently Recruiting People with SCI/D

Click here for the list of studies currently recruiting.

Topics include:

  • Exercise experiences
  • the future of mobility-related technologies
  • fatigue
  • educational needs in pregnancy
  • preventing urinary complications
  • employment

**PLEASE NOTE: These studies may have specific criteria, so be sure to check the inclusion criteria first.

CareCure.org Forum: Surveys and Research Studies Page

Click here to see all the postings to CareCure for SCI-related research.

IMPORTANT NOTE: Please be aware that ANYONE can post a study here, so vet a posting very carefully before replying.  Also, you may need to register to be able to view some content and/or reply on the forum.