Resources

Resources Galore! The SNERSCIC team has put together a bunch of top-notch resources just for you.

The New England SCI Toolkit (NESCIT) is a collaborative effort between facilities providing spinal cord injury (SCI) rehabilitation in New England. This collaboration ensures patients throughout New England and beyond are receiving the same coordinated standard of care wherever they receive rehabilitation. Further, this Toolkit will aid in building capacity at facilities that may not treat patients with SCI often enough to have developed expertise.

Our objective was to develop a toolkit for SCI education and care designed as an educational tool for use after acute rehabilitation to help improve functional outcomes while decreasing the frequency of complications associated with paralysis for people with SCI.

Facilities participating with NESCIT will contribute to the communication between clinicians to share treatment ideas, problem solve, and discuss program development ideas. We encourage NESCIT Network and others, to share their processes and resources with other facilities to ensure consistency of care.

THIS TOOL DOES NOT PROVIDE MEDICAL ADVICE. It is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Never ignore professional medical advice in seeking treatment because of something you have read in the Toolkit. If you think you may have a medical emergency, immediately dial 911.

Patient/Family/Caregiver Education

Patient/Family/Caregiver Education

Individuals, their family members and caregivers taking part in inpatient rehabilitation for spinal cord injury (SCI) will receive appropriate education to maximize functional independence and minimize secondary health conditions.

Learn More
Autonomic Dysreflexia

Autonomic Dysreflexia

All care providers will identify episodes of autonomic dysreflexia (AD) and provide appropriate intervention. Intervention will include identifying and removing noxious stimuli, providing medical care as indicated, and monitoring patient’s status.

Learn More
Skin Care

Skin Care

Patients with existing pressure ulcers will receive appropriate treatment to decrease severity of existing ulcers and prevent the development of new ulcers.

Learn More
bladder management

Bladder Management

Upon admission, each patient will have an assessment of bladder function. A bladder management program will be initiated and followed for all patients taking part in rehabilitation in order to resume regular and complete emptying of the bladder for urinary system health.

Learn More
bowel management

Bowel Management

Each patient will have an assessment of bowel function. A bowel program will be initiated and followed for all patients in order to strive for regular and complete emptying of bowels.

Learn More
sexual health and fertility

Sexual Health and Fertility

Individuals and their appropriate family member(s) or partner(s) will be offered age specific education and counseling regarding medical and psychosocial issues related to sexual health and function after an SCI.

Learn More
spasticity

Spasticity

Individuals and their appropriate family member(s) or partner(s) will be offered age specific education and counseling regarding medical and psychosocial issues related to sexual health and function after an SCI.

Learn More

One of our main goals is to ensure each and every person affected by SCI receives the information and resources they need when they need them. We help connect people to community and national resources to empower individuals to advocate for themselves to lead independent and meaningful lives.

The SNERSCIC team provides ongoing informational referrals to people living with SCI, their families and friends, caregivers, and healthcare professionals, as well as PCPs and care providers at hospitals, rehabilitation facilities, and nursing facilities throughout New England.

For resource referral, please feel free to contact:

Dave Estrada

SNERSCIC Program Manager 857-225-2472 destrada@partners.org

Have you been searching high and low for GOOD and RELEVANT resources so you can take care of some important things for living your best life?!? Then look no further! Below, we offer our most trusted local, national, and online resources under topics that matter for people living with SCI, not to mention their family, friends, and caregivers. Healthcare professionals – never fear – This list also contains relevant resources for you! If you could use more personalized support, feel free to request a Resource Referral from our team.

SNERSCIC Network Site Resources

Spaulding Rehabilitation Hospital Resources

Gaylord Specialty Hospital Resources

General Resources

Special Events (click on title for more info)

SCI Education Events

Social Events

Local Support Groups

Also Check Your Local Independent Living Center: